Appendix D - Resources about Patient-Oriented Research (POR)
A patient-oriented research (POR) approach was taken in this project to ensure that survivors’ voices were reflected in the both the research study and this guide. It is recommended that researchers consider using a POR approach when investigating complex trauma/CPTSD to reflect the lives, needs and wants of those who deal with it daily. Several articles, websites and videos have been included to assist with this. Click here to download a pdf of this appendix.
Articles
Alessi & Khan (2022), (PDF) Toward a trauma-informed qualitative research approach: Guidelines for ensuring the safety and promoting the resilience of research participants. In this article the authors lay the groundwork for a trauma-informed qualitative approach and then outline five guidelines for conducting research.
Sunderji, N. et al. (2019). Why and how to use patient-oriented research to promote translational research | Request PDF. This article provides a general introduction to patient oriented research, its potential, and its value. It also suggests strategies for conducting patient-oriented research effectively, including a description of common barriers and how they can be dealt with.
Tscherning, S.C., Bekker, H.L., Vedelø, T.W. et al. (2021). How to engage patient partners in health service research: a scoping review protocol. https://doi.org/10.1186/s40900-021-00268-z. This paper presents a review of published literature on: a) how to engage patient partners in the research process; and b) what impact such engagement has on research outputs.
Websites
Canadian Institutes of Health Research - Patient Engagement - CIHR
International Association for Public Participation (International) - https://www.iap2.org/mpage/Home
NHS Public Involvement (UK) - https://www.hra.nhs.uk/planning-and-improving-research/best-practice/public-involvement/
Person-Centered Outcomes Research Institute (USA) - https://www.pcori.org/
Trauma Research Foundation - https://traumaresearchfoundation.org/
Videos
Canadian Institutes of Health Research. 6 Reasons to Engage Patients in Research. Patient Engagement - CIHR
Herod, L. (2025). Patient Oriented Research in Trauma Research. https://vimeo.com/1106301076?share=copy
Januwalla, A. (2023). Patient Oriented Research 101. https://www.youtube.com/watch?v=ebHd2SVRzcs
